5K Registration Link
Tuesday, September 30, 2014
Saturday, September 27, 2014
Thursday, September 25, 2014
Wednesday, September 17, 2014
Time is running out...
It is with great sadness that I report today the loss of yet another SIOD- Schimk Immuno-osseous Dysplasia child. Piper Smith was a beautiful young girl, who like Emily was put through more than any child should have to bear. I spoke with Piper's mother, Pam several times via telephone and countless times on Facebook. Piper and Emily were very close in age and this haunts me to my very soul- once again- as all I can wonder despite all my being to BELIEVE- is when will it be Emily's turn? We have surpassed ALL odds with her and time will run out. Please- in honor of Piper and the other children lost to SIOD- spread the word about LGF and SIOD and donate what you can to help us raise the desperately needed $3.5 million for research to obtain a medicine to help these children. I become more and more afraid that Emily will not be here to see that goal obtained. She has to be. In my next breath- I BELIEVE- I have to!
Friday, September 12, 2014
Get your shoes in gear and register here:https://secure.getmeregistered.com/get_information.php?event_id=11706
Tuesday, September 9, 2014
Subscribe to:
Posts (Atom)