Saturday, December 30, 2017
New Update on Caringbridge on Emily and the foundation.
https://www.caringbridge.org/visit/emilykoesters
Click the link to visit and learn more about Emily's SIOD journey.
Sunday, December 10, 2017
Believing in Emily
Please Watch. Please Share. Please Donate. (It is matching funds month😉)
Together We Can Do Something Extraordinary! #BELIEVINGINEMILY #SIOD#LITTLEGIANTS
Together We Can Do Something Extraordinary! #BELIEVINGINEMILY #SIOD#LITTLEGIANTS
*Videography by Jessie Addleman ❤- friend & UNL student
https://youtu.be/UrEQwfk7jLw?list=RDMMUrEQwfk7jLw
Tuesday, November 28, 2017
Giving Tuesday
Today is #GivingTuesday 🎅
Believe in Emily Koesters and our family knows there are many nonprofit organizations to choose from and we hope you are taking time to give to your favorite, which we hope is The Little Giants Foundation❤. See the LGF link called DONATE NOW at the side bar on this page! #believe
Sunday, November 12, 2017
Big Things Ahead!
Please go to my personal Facebook page- Erin Koesters and share this video after hearing our big announcement!
Monday, October 23, 2017
October is Dwarfism Awareness Month
Dwarfism Awareness Day is Wednesday October 25th....help spread awareness by wearing Green!
Use the hashtags #believeinemily #dwarfism on Social media with your GREEN selfie on Wednesday, Oct 25!
Emily has a rare type of SED Dwarfism underlying her SIOD disease. (There are over 200 types of Dwarfism!)
Use the hashtags #believeinemily #dwarfism on Social media with your GREEN selfie on Wednesday, Oct 25!
Emily has a rare type of SED Dwarfism underlying her SIOD disease. (There are over 200 types of Dwarfism!)
Saturday, August 5, 2017
Heavenly Birthday Wishes to our founding Little Giant!
This lil' slugger is the reason Little Giants was originally started and the reason we have some great initial research on #SIOD! ❤ HAPPY heavenly 13th birthday Mitchell Cupps!🎂🎈 We treasure the days we were able to meet you and grateful you brought our families forever together! 😍 Our love to you always Michelle Evans Mitchell & Troy Cupps!
Tuesday, August 1, 2017
Sunday, July 16, 2017
Saturday, April 15, 2017
Sunday, April 2, 2017
Extraordinary Happenings
So much has happened since the last
post! Most of it has been on the side of “fun”, although some of
the medical stuff for Emily has been more on the side of “not so
fun”. LOL.
I had a care conference with many of
Emily's specialists in March and that was successful and interesting.
The biggest things were to get a higher percentage of her team to be
more aware at a higher percentage of time and iron out some kinks
with systems like, ER visits, admins, medications and the ongoing
“stuff” that it takes to keep things running more smoothly than
not with Emily and make it so I can be more of her mommy, rather than
the orchestrator of everything inpatient and out.
Little Giants participated for the
first time in the Gretna Biz Fair and I felt that it was very worth
while and a great opportunity to visit with our community and spread
more awareness of Emily and her disease #SIOD.
Emily has of course been continuing her
aquatherapy and horse therapy, along with her monthly infusions and
labs. She even got to try out some ballroom dancing for free for a
few sessions and really enjoyed it!
Emily is still fighting the fungal
infection in her lungs and continues to be monitored for that. We
also got her sleep study results back and in addition to her apnea
episodes( which were enough to warrant need for treatment, but not
too terrible) she also presented – as I have recorded from home –
oxygen desaturations. We will be added a CPAP machine to her list of
nightly hook ups now as well.
And Emily and I flew out to Delaware
this past week to take care of things in regards to her skeletal
dysplasia and genetics issues. We of course stayed at the Ronald
McDonald House and saw old friends and made new ones! We have such
an interesting time out there and she doesn't ever want to leave.
Emily loves it for a few reasons, but only 1 that really matters as
her mom, “because there are other kids here like me, Mom!” No,
none of them have #SIOD, but they all face challenges, are unique and
been through serious shiz! It is really hard to do justice of what
it is like out there, but suffice it to say that people come from all
over the country and other countries to AI du Pont Children's
Hospital and to see Dr. MacKenzie and Dr. Bober! Colleen and Angie,
too the real brains behind them! (Love you gals) Practically
everyone, everytime, from all levels of staff & volunteers are so
warm, fun and friendly! The atmosphere is like no other we have
experienced.
Switching gears, we have been working
on as we do all year long, ways to raise awareness and funding for
LGF/SIOD. Most recently we designed Postcards and teamed up with
Gretna Public Schools and had them help us address them and we have
sent out the first wave across the USA in our Postcard Campaign. We
will be sending out another batch soon and then doing follow ups. We
have already received some donations and didn't even ask for them as
we are first educating on who we are!
We have had a #GIVE10 campaign going
on- $10 by 10,000 people over 100 days= $100,000 needed for a phase
of research! It officially “ends” April 12th, so keep
those tax donations rolling into
www.littlgiantsfoundation.blogspot.com
or send checks payable to Little Giants Foundation, 15603 Hwy 6,
Gretna, Nebraska 68028.
And, SAVE THE DATE! 9-17-17 4th
Annual Family Fun Trail Run/Walk & Kids Dash
Early Bird registration will be coming
out soon so watch for it on our FB pages @believeinemily and
@believeinlittlegiants
April is Donate Life Month! Emily and
Joe's Kidney Transplantaversary is next month! We have met so many
wonderful people in the transplant community! Many continued
blessings to you all and your loved ones with us now and forever in
our hearts! Please consider being an organ donor and a bone marrow
donor! Private message me, or text me if you need help on how or
need more info! 402-658-9624
Saturday, February 18, 2017
LOVE DAY
We are so very appreciative to everyone who invested in our red LOVE #littlegiants shirts to wear in honor of Emily on her Nebraska Little Giants Day Feb 10 & 11, 2017! We also thank those who wore shirts they had purchased prior, or wore red in her honor! Here are a few pics, but I know there are more and I hope ya'll tag me on social media as some have done! I also want to thank Gretna Public Schools and Ashland-Greenwood Public Schools for their parts in raising awareness and money for our Little Giants Foundation! Together we can do something extraordinary!❤
Monday, January 30, 2017
❤EMILY'S NEBRASKA LITTLE GIANT DAY COMING SOON!!!❤
We have our newest red "LOVE" shirts available for purchase @ $20 for locals ($25 if shipped) that the Gretna Middle School Art Club designed and we had for her 5K this year.
Wristbands are 1 for $3 or 2 for $5
People may wear them on either Friday, Feb 10 to work, school, etc in honor of Emily or on the actual day of Saturday, Feb 11, so I will leave it up to you all as to the day you would like to choose.
We would love for you all to post pictures with the hashtag #give10#emilyslittlegiantday via twitter, IG and FB wearing these for Emily.
Twitter @littlegiants14
FB @believeinemily & @believeinlittlegiants
IG @littlegiantemily
Twitter @littlegiants14
FB @believeinemily & @believeinlittlegiants
IG @littlegiantemily
Tuesday, January 3, 2017
100 Day Campaign
We are launching a campaign for the Little Giants Foundation on behalf of Emily Koesters, #1of5inUSA with #SIOD. IF 10,000 people could give even $10 in 100 days we will reach our goalof $100,000 to help provide medical research to prolong these extraordinary Little Giants' lives! #give10 #believeinemily
*If you are unable to give 10 then share and tag a friend!
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