Emily's Nebraska Little Giants Day/Week

In honor of celebrating our differences with our friends Omaha Storm Chasers 🌀⚾and the five elementary Gretna Public Schools💚, we engaged in several activities in our community.  I enjoyed spreading awareness and educating the children of our community about kindness, our daughter Emily Koesters and our Little Giants Foundation❤ as Mrs. Nebraska USA Worldwide!💃
I shared Understanding Dwarfism book "Not Too Big, Not Too Small...just right for me!" by our friends James Korpai and Darlene.  The Stormy mascot and friend, Becki also read and helped act out the books with the students.
One evening we attended a home HS basketball game and threw out LGF shirts. The middle schools helped educate about Emily and LGF, too. Emily's school, Gretna Middle School had activities all week and all of the students and staff wore PINK stickers with Emily's name on Friday. So cool. Emily even received an award.
Also, the staff who chose to participate in wearing jeans on Friday donated $5 each and chose our organization. They raised over $2,000 toward SIOD research!🤗
I am super stoked to announce LGF will continue to TEAM UP with the Storm Chasers during the opening game of their season, April 5th! Specific details to come! ⚾🌀❤  #SIOD #believeinemily #gretnapublicschools #omahastormchasers #mrsusapageant
#mrsworldwidepageant

Exciting SIOD Research Update

Emily and I had a very productive time while in California this past week.  This had been in the works really for the past year.  If ya'll recall the original lab in Canada shut down in Dec. of 2016, but Dr. Boerkoel put us in touch with Dr. Lewis from Stanford who was taking over what could be salvaged from the Canadian lab and working on really three primary things for the good of SIOD.  1. T- cell deficiency ( immune system,  Haplo stem cell transplant prior to kidney transplant- if possible with a less invasive chemo regiment) 2. Vascular work for the issues with SIOD and 3. ultimately a drug protocol for all children diagnosed with SIOD.  
Again- this is all research, and much more to it than I am posting here and in the beginning stages, but exciting none the less and great to be in on the ground floor! Along with this comes a hefty, yet doable, $30,000 a month to keep the lab open and $6 million to carry out the research for it to be a realization! We will address this more later and how ya'll can help prolong Emily's life and others! I took several pics of the docs there, the lab where DNA work is active and those working in the lab.  Everyone was thoughtful, genuine and great to talk to while Emily and I were there.

So, as you have read 2018 has been interesting to say the least thus far.  I haven't even touched on all the health care issues with Emily and other children with life limiting diseases that I have been working on with our government!  Or what lies ahead this year! 

Thank you for Believing in Emily and remember, Together We Can Do Something Extraordinary!

Follow the link to DONATE on this page! Even $1, $5, or $15 makes a difference! Truly.

Believe-
Erin Koesters

SAVE THE DATE!

SUNDAY, SEPTEMBER 30, 2018 @ 4 PM

Watch for more details to come!

Write it on your calendars today.

New Update on Caringbridge on Emily and the foundation.

https://www.caringbridge.org/visit/emilykoesters

Click the link to visit and learn more about Emily's SIOD journey.

Believing in Emily

Please Watch. Please Share. Please Donate. (It is matching funds month😉)
Together We Can Do Something Extraordinary! #BELIEVINGINEMILY #SIOD#LITTLEGIANTS

*Videography by Jessie Addleman ❤- friend & UNL student

https://youtu.be/UrEQwfk7jLw?list=RDMMUrEQwfk7jLw

Giving Tuesday

Today is #GivingTuesday 🎅

Believe in Emily Koesters and our family knows there are many nonprofit organizations to choose from and we hope you are taking time to give to your favorite, which we hope is The Little Giants Foundation❤. See the LGF link called DONATE NOW at the side bar on this page! #believe

Big Things Ahead!

Please go to my personal Facebook page- Erin Koesters and share this video after hearing our big announcement!