How is she in High School?

How? How is this even possible? I mean this literally and figuratively! You see, Emily keeps defying the odds! I can't even count on my hands the SIOD children who have EVER survived long enough to attend High School! 
NOW, don't think that this has come easy. Emily "appears" to look like a healthy young teenager here, yet to unfold her story that keeps writing itself would blow your mind if you don't already know even a portion of her medical journey.
We are so thankful to have this little angel and are happy to keep educating and bringing awareness to this rare genetic life limiting disease- SIOD!
Now go rock this 9th grade year at Gretna High School, Emily!
Go Dragons💚