Emily had a planned PICU inpatient stay at UNMC to monitor some things for several days and although we were looking for some answers, we had hoped this wouldn't happen, but this is why we are here, in a safe environment should anything happen as it did today.
Emily had a grand mal seizure today and has lots of little activity since yesterday. My heart sank and a ton of emotions welled up as I held her hand and watched and talked her though it along with a team.
Fortunately, so far this time she came back to us quicker than the debilitating ones like this in 2015. I promised her she'd be out by Homecoming Friday night before this today and hope now we can get her in a safe place. She is afraid to go to sleep and didn't know and doesn't know when they happen, but wanted to know.
She is saying some things that are off, and fighting sleep, but in a good place right now.
Now to figure out these two types she is having and what else to do for her once she stays stable.
We are thankful for the familiar faces and the new we get to see here and even though how I had arranged the week for our family while here, that all changed today and we will take it one step at a time as we always do and BELIEVE!
A very sleep deprived Mommy Erin right now-
Tomorrow is a new day!
EK
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