Emily is truly such a source of inspiration! The other day she had an episode coming on when we arrived at her aquatherapy session. She used her breathing and focused on some techniques and with some coaxing to go in we made it to the pool where between her therapist and I managed to get her to sit on the steps in the therapy pool and by the end she was feeling stronger. Then we were off to gather some much needed groceries. Her face when trying to figure out which steak she wanted is priceless! Keep powering through our brave, resilient, warrior princess!
Not sure how to take it when the neurologist residents, fellows and attendings are excited to see the #SIOD girl and study her brain some more.
Joe and I are all about helping others and if this can help not only other #SIOD children and children with epilepsy then by all means study away!
Yesterday’s appointment brought up some interesting questions, observations and slight adjustments.
We continue to sit back in amazement at our warrior princess!
Every day Emily keeps pressing on. Here she is working in two different therapies ( one for continued neck/arm pain) and the other to slowly get her comfy back in the saddle again!
