Our blood drive with NCBB was extended from the 11th to the 18th and we are so grateful to be a part of helping to SAVE LIVES each year celebrating Emily's birthday and being Gretna's Hometown Hero.
A little bump in the road occurred. July 3rd Emily fell- twice in the back yard by the mulberry tree. There were no visible signs of injury and she said her left leg hurt some, but okay. As the days went on it hurt her more and more and even to the touch. She wanted it wrapped and was using her crutches to not put wait on it. We iced, elevated, and monitored from home.
Fast forward to July 20 and it wasn't getting better and had some more swelling. I contacted her primary doctor and explained it all and sent pictures of her legs. July 21 her doc called us again and said to take her to Children's Emergency as he was worried of a blood clot.
So, I took Taylor-Jo to grandma's in town and Emily and I headed to Children's ER. I was a bit nervous for several reasons: ER and COVID19- eek. I know they have safety measures in place, but we work so hard to stay away from it all! What if it is a blood clot and we waited this long! I'd feel awful. What if it is broken? And worst of all- Emily is nervous about going, probably for all of these reasons, and I need to keep a brave face as I don't want her anxiousness to turn into an episode/seizure!
We always appreciate the thoroughness of everyone and the amazement of her chart with SIOD. We went in for her leg and in listening to her lungs- they heard crackling in her lower right lung. Well- poop.
After a 40 minute ultrasound of her left leg to check for blood flow and other signs and a leg x-ray, she then had RT ( respiratory therapy) inhaler ( she has mild asthma although wasn't showing signs of issue) and the lung crackles cleared. Good deal. We found we will need to keep up with maintenance inhaler at home for now. They did not find any broken bones, or blood clots-thank goodness- so her pain is a mystery for her leg.
Emily was not happy with that answer as she has heard it so many times before with this disease. So five hours later we went home with a keep icing, elevating and staying off of it and your primary will follow up in a day or two with a plan.
We are happy for summer and swinging and pool time in our backyard and the fact that Emily has outlived her life expectancy. We are brutally reminded however of how quickly things can change and grateful it ended up not being emergent this time.
Stay safe and well and be mindful of others.
(no pics this time as technical difficulties. go to our personal caringbridge site for photos:caringbridge/visit/emilykoesters
