OCTOBER is flying by already. So many occasions have been happening and keeping us on our toes.
Not only is October Breast Cancer Awareness Month ( check those tatas all) it is also DWARFISM awareness month. Emily has SED (spondyloepiphyseal) type of dwarfism and a rare form of that within her SIOD disease.
We had a great social night at our local Piezon's Pizzeria and were the #WECARE organization on Wednesday the 6th.
Our 8th Annual Farm Run & Festival took place the 9th and 10th and we had gorgeous weather. We are so appreciative for our volunteers, supporters, sponsors, donors and event attendees. I am excited to share photos that my talented ol' high school friend took for us when she gets them done! We raised over $6,000 for #SIOD research! That is exciting.
We also closed out our 50K cite-sequencing project with Stanford and are ready to work towards then next research project. More to come on that in the future. Together We Can Do Something Extraordinary!
Today Emily is getting her every 3 week IVIG infusion treatment. Tomorrow- Iowa City bound for the one month follow up check up and imaging of her eye surgery. She is not feeling very hopeful that this surgery took. We are trying to stay optimistic for her, yet we just don't know. Emily has been very worried and anxious and wants to just know already. She truly is a warrior princess.
Enjoy a few photos and along with your pink throw on some green to show your support of little people like Emily and others as well.
