Emily has had on again, off again migraines and seizures for well over a decade! They are so random and sometimes associated together and sometimes not. The seizures have been very debilitating over the years. When I say debilitating, I don't mean just tired and down and out for an afternoon or day or two, I mean full on having to relearn to walk and talk again seizures. We have also discovered over the years that she has two types of seizures happening. Last month Emily saw a new neurologist and we increased one of her seizure meds. We thought it was working until last week. So yesterday he had us increase the other seizure med she takes as well. Emily is also going to get another brain MRI. We shall see if this helps. I have talks again with Dr. Lewis at Stanford, our research doctor, next week in regards to this issue. Although we had felt alone in this for many years as far as SIOD is concerned, we unfortunately are learning that more SIOD kiddos are experiencing similar issues and they aren't always detected on EEG's. We need to figure out how to help all of our kiddos.
We did have a nice Halloween venture out in a friend's neighborhood as we live in the country. And I am also thankful that I am able to be home with Emily as she always has us on our toes.
