The brain is so complex. Emily's brain keeps us on our toes as well as everything else about her and this SIOD disease. We had a few good months with no breakthrough seizures or episodes or migraines and then last Thursday evening- wham. She has been having them every evening since then and sometimes multiple times and Sunday evening was a doozy with a whopping, painful migraine, dizziness and extreme nausea. We post a lot of education, informative pieces and much of it shows the good days with Emily. This is what her life is like more often than not on any given day. It isn't all pretty. It isn't easy. It isn't smooth nor is Emily ever "out of the woods". This disease isn't going anywhere and it reminds us when life begins to become typical again.
We keep on keeping on. That is what we do. Today she is getting her IVIG treatment. Today is a better day so far. Today we continue to fight for Emily and all SIOD children.
Here's how you can hep us:
We have another $100,000 project at Stanford ahead of us to help fund some of the neurological issues our children with SIOD experience to find out the why’s of these happenings. Can you help?
To become a monthly donor: go to the LGF link. Click the Drop down menu once you click to donate. Easy as 1, 2 3!
