Tuesday, January 3, 2017

100 Day Campaign

We are launching a campaign for the Little Giants Foundation on behalf of Emily Koesters, #1of5inUSA with #SIOD.  IF 10,000 people could give even $10 in 100 days we will reach our goalof $100,000 to help provide medical research to prolong these extraordinary Little Giants' lives! #give10 #believeinemily

                                  *If you are unable to give 10 then share and tag a friend!

Wednesday, December 28, 2016

Monday, December 12, 2016

Wishes Do Come True!

Please watch these video links and see the magic of Christmas at work!

My Christmas Wish

Wish Granted!

Our gratitude to It Works Global!  I am so proud to be a part of such a giving company!

Erin Koesters

Sunday, November 27, 2016

Author unknown There is no footprint too small to leave an imprint on this world.

It is with a heavy heart I let you all know that this month's featured Little Giant, Jace Williams passed away last night.  In speaking with his mother, Courtney she had told me he had pneumonia in both lungs yesterday and trouble breathing.  Jace was awaiting his kidney transplant and could not fight anymore.  

I told Courtney we will keep fighting for her little giant angel and those that passed before him.  Like I have said since this diagnosis first reared it's head at our Emily, "we are fighting against time".  We cannot and will not take it for granted as we know and have seen and invested in these families and their children.  

Our sincere condolences to Jace's entire family and I will update in regards to his memorial as I have word.

And to all of our friends and family, please wrap your arms of strength around Courtney and her family and show your love for them here in the comments, on our FB page @believeinlittlegiants, or to Courtney Marie Nichols on FB.


Wednesday, November 23, 2016

Jace Williams is our November Featured Little Giant!

Jace Williams is a five year old boy who loves star wars, play doh, singing songs, reading, cars, and Casper the movie!  He was born on August 25, 2011 and was diagnosed at the age of four in May of 2015.

Jace is on dialysis and awaiting his kidney transplant pretty soon. His mom, Courtney and I have become friends through LGF and FB and we actually got to meet along with our two SIOD kiddos one day at Children's Hospital in Omaha recently!  He lives currently in Juniata, Nebraska and his family members include Kendra Nichols, Mark Nichols, Laurie Nichols, Connor Williams, J.j. Williams, Nancie Jones, Greg Jones, Julie Jones.

Courtney shared a fond memory with me of the time Jace go to meet NASCAR drive Jimmie Johnson this past summer!

Sunday, September 25, 2016

Paizlee Davenport-September's Featured Little Giant

You all may recall that Paizlee's big brother, Kruz was our July featured Little Giant- read on to see why his little sister is our featured September Little Giant. (Copied from their website written by their mom and my friend, Jessica.)
 "Paizlee was also confirmed to have the same gene path as Kruz, making her "number 6" documented case in the USA on Aug 22, 2016. She also has Schimke's. Possibly making her one of the youngest every diagnosed. Devestation wasnt even the word we felt. Both of our babies are 2 out of 6 cases of an extremely dangerous rare disease right here in Muscle Shoals, AL. We will FIGHT!!!
We will be joining a research team to raise awareness and the funds."

Thursday, August 25, 2016

Our August Featured Little Giant of Spain: Juanico Jimenez De La Calle

Juanico Jimenez De La Calle 

Born October, 11, 2003 in Cartagena (Murcia) Spain, was diagnosed with SIOD in 2008 and marched with God on November 24, 2014.

I visited with Juan's mother, Angelita De La Calle Hernandez and father, Fulgen Jimenez Hernandez via facebook many times and followed Juan's story on http://ayudemosalpequenojuan.blogspot.com.es/.  
Please read the following taken and translated from his blogspot about this precious little giant from Spain:

John is like this: really big one child. We know that we refer to a Juanazo , 
a child with fortitude and strength of a man. Juan faces everyday as an adventure 
despite its difficulties . Without fear of tomorrow , without fear of their 
illness : Free .

Simply observe five minutes to see that is those which, although falling
a hundred times , does not give up : he falls , gets up ; falls ,
gets up, and so until it does. In its review , the most common phrase of doctors
is: No I can not believe ! It seems incredible to have this disease.
Despite his ailments too many! -often Is no complaint or ask " Why ? " . 
Always it recovers thanks to its immense inner strength , which seems miraculous .
His zest for life make him strong and does not decay. Fight for him, for his 
family. We always give to keep fighting together , for him, for ourselves,
for others.