Things Got A Lil Crazy...again

 

Things got a lil crazy...again.  Emily had her 57th surgery.  This one was on the same eye they tried to repair last month.  August and September have had many times of feeling anxious, sad and scared, yet we quickly turn to humor and/or gratitude to pull us through.  When in a state of gratitude it is nearly impossible to feel anything but love and joy.  

Here is a tidbit on SIOD and pediatric cancer as well for pediatric cancer awareness month:

Emily battled lymphoma twice between the ages of 5 and 8.

Pediatric Cancer Organizations in Nebraska

                                                     https://www.sammyssuperheroes.org/

  http:/www.myangelsamoungus.org

https://www.campcoholo.com/

I cannot tell you enough great things about these  organizations.  Each of them help families with children with pediatric cancer.  Each of them have been there for us since Emily was first diagnosed with cancer at the tender age of 4.  They could have been there through treatments and stopped caring or contact after that point.  They continue to be a support in many different ways from supporting our own foundation, to honoring Emily in different ways and including her sister on events. We love and appreciate our Angels Amoung Us, and cheer on our Sammy's Superheroes and embrace Camp CoHoLo for the doctors, nurses and survivor volunteers who keep our children safe and loved while enjoying life with others like them at camp.  Please find out more how similar yet different these great people are and their non profits.  We support and value them each.

Pediatric Cancer Month

 This month, each week we will be talking about pediatric cancer.  

Our Emily battled lymphoma not only once, but twice via UNMC/Children's Hospitals in Nebraska!

Here is a resource to get you started.

UNMC.EDU states:

The Pediatric Hematology/Oncology and Blood and Marrow Transplant division is a regional referral site for the diagnosis and treatment of infants, children and adolescents with cancer and blood diseases. We offer the state's only pediatric hematologists/oncologists who are nationally known experts in their fields.  The division is comprised of physicians and health care professionals with decades of experience dedicated to patient care, research and teaching.  We offer a comprehensive range of services provided by a team of health care professionals at both UNMC and Children's Hospital & Medical Center.  The division is a member of Children's Oncology Group (COG), and members are involved in national and international research through the support of the Pediatric Cancer Research Group (PCRG). 

Furthermore, the American Journal of Medicine found that: SIOD is not a classical cancer predisposition syndrome in which there is increased occurrence of multiple cancers although there is an increased prevalence of NHL (Non Hodgkins Lymphoma, which Emily had twice)(insert my own) and possibly osteosarcoma. The detection of EBV in two of the three NHL tumors suggests that the increased prevalence of NHL is attributable to the immunodeficiency.

Next week we will look at some outstanding organizations who help pediatric cancer families, like ours and other friends we have met along the way, here in Nebraska.