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For being in quarantine we sure are busy. Hahaha.
The girls wrapped up their school year with me and their distance learning, and we are awaiting better weather here in Nebraska so they can jump into our constructed pool Daddy puts up each year.
Omaha Gives was a great success for the foundation and our t-shirt sales have exceeded our goal and we still have 8 more days to get orders in!

customink.com/fundraising/little-giants-foundation

Today Emily has her marathon infusions of her every 21 day IVIG and quarterly pamidronate.  SIOD children have compromised immune systems and the IVIG is an immunoglobulin therapy that helps to give a little boost to help fight infections that these kiddos cannot fight on their own and the pamidronate is for her bone density.

Omaha Gives Believe Board of Donors

 

  Ready to head out to get infusions and labs

May continues to Bloom

May continues to bloom for us at the Little Giants Foundation despite the odds stacked against us all during COVID19.  Our hope is that those reading this are staying safe and well.  We are grateful for the abundance of kindness and generosity that others have shown during this uncertain time.  It humbles us once again to see how empathetic people are to think of us.

Last week we had a local DJ- Alex Pearson with DJAMP take it upon himself to hold a virtual trivia night for our non-profit and raise $855 from the goodness of people donating to our cause.  Such a huge help as we have had to cancel and postpone events due to COVID19.  But the research cannot be cancelled or postponed for SIOD.  The funding has to stay steady and increase to help save not only our Emily, but other children now and in the future.

We still have our pledge drive for ONE THOUSAND people donating $10 a month for our 2020 goal of $100,000 for research at Stanford.  Last week we updated our LGF gear and have some stylin shirts and sweatshirts as well.  Our goal is 50 to start to print and we are getting closer.  Here is the link to order: https://www.customink.com/fundraising/little-giants-foundation?ref=copy-link_social_desktop-campaign-page-share-top-v3&utm_campaign=desktop-campaign-page-share-top-v3&utm_content=little-giants-foundation&utm_medium=social&utm_source=copy-link&side=back&type=4&zoom=false

Emily is holding her own and knock on wood her numbers are stable enough for her and despite a few more aches and pains most likely due to the decrease in therapy work, she is having good days.

The girls finish distance learning on Friday the 15th and then "summer" unofficially begins.  And Taylor-Jo will be turning NINE on the 19th!

Omaha Gives is May 20th although we are taking scheduled donations now at https://www.omahagives.org/index.php?section=organizations&action=overview&fwID=2025

And finally- our gardens are planted although we need to get filler flowers at some point.  We are ready to tend to the outdoor life here on our little acreage in Nebraska and get ready for the next event and the next time we get to hang out in person with friends and family.

BELIEVE

Kidney Celebration

May 6, 2008 Daddy Joe gave his kidney to Emily to help prolong her life!  Little did we know at the age of 4 this would be the beginning to her #SIOD diagnosis and many, many challenges to come.
Yesterday we celebrated their 12 year kidney birthday.  In their honor we have come out with updated Little Giant shirts, hoodies and crew neck sweatshirts!  Here is the link.  Our goal is 50 to start and get them printed and sent out!
Little Giants Gear- click to purchase!

Here are a few pics from our family of four celebration after Emily's every 21 day IVIG infusion was over last night: