October kept us on our toes with Emily's daily, weekly, monthly ( depending on what it is) therapies, doctor appointments, IVIG treatment and labs and a few other tests sprinkled in just for fun. (SIOD life folks) Emily and I took a medical trip out to our skeletal dysplasia friends at AI duPont Children's Hospital in Delaware the end of October as a follow up to her hip surgery this past April.
November is not slowing down any with the continued therapies, tests, treatments, labs and doctors. Oh and Emily attends school part time in between! That's the thing with SIOD, immuno suppression is no joke for these kiddos and as we enter this cold and flu season our precautionary measures get enhanced as even a simple cold can turn ugly fast for a child with SIOD.
We continue to work daily to educate, raise awareness and funding for SIOD research. Please click on the side link to see what our head researcher, Dr. David Lewis at Stanford in California is doing to help our children now and in the future. We also have more exciting things to come in future blogs. I am speaking to as many groups, businesses and organizations as I can muster and note a few good things that have come our way like funding from this summer's golf event with Gretna Community Foundation and one picture of some of our Little Giants Board Members. (missing 3 from that photo- I'll share more later)
Also note we will be participating in #GivingTuesday Nov 27th! It also happens to be the start of Matching Funds with our affiliate fund: Midlands Community Foundation. New donors will be matched Nov 27-Jan 7 up to $5.000! Click the Donate link to the right as well ANYTIME!
Please share, comment and consider becoming a monthly donor.
Believe-
Erin Koesters
