It's Going Virtual!

 

Registration is open for 7th annual Little Giants Farm Run! VIRTUALLY

Registration is open for our 7th annual Little Giants Farm Run. The farm run is a great way to get outside and spend a fun-filled day with family and friends while social distancing. Proceeds go towards The Little Giants Foundation to raise money for SIOD awareness and help fund research. Schmike Immuno Osseous Dysplasia is a rare, genetic, life-limiting disease that causes great suffering to the children who have it. Symptoms include vascular and kidney disease, a weakened immune system, and short stature caused by problems with skeletal growth.

 

The run is a VIRTUAL event this year including a 5k run, one-mile walk and a kid’s dash. We encourage you to keep time and send it in to us via a GARMIN or other device! This year, the event will take place on Sunday, October 4th and packet pick up will  be held at 13714 S 84th St, Papillion, NE, 68046. on October 3rd where CDC guidelines will be practiced.

This run is a great activity for families to be together for a good cause. Little Giants Foundation was created to become a voice for those with SIOD and other rare forms of dwarfism. Please click the link below to register for our run and help raise funds while having a great time!

https://ultrasignup.com/register.aspx?did=76041

Keep On Moving!

 Well- for those of you following Emily's leg saga, we have an answer and some next steps toward progress.

Emily's ped doc feels she has: 

Complex regional pain syndrome is a chronic health problem that causes long-lasting pain. It is often caused by an overreaction in the body to a physical injury.

Symptoms include constant pain ranging from mild to severe. You may also sometimes have swelling, sweating, and changes in skin color and temperature in the affected area.

Complex regional pain syndrome might go away on its own over time. But in some people, the symptoms can last or even get worse. Common treatments are pain medicines, physical therapy, electrical nerve stimulation, and injecting an anesthetic into the nerves. ( Cedars-Sinai.org)

So he is working with the pain management team and some from physical therapy to set up next steps to help control her pain and not interfere with her other medications and do it all via zoom!