Thursday, April 18, 2019

Emily Update

There is kind of a lot of a little that is going on with Emily right now. Her left ankle is better, however she is having increased days and amounts of headaches (perhaps migraines even) which can be prevalent in #SIOD. Increased spilling of protein from her kidney. At the same time her daddy Joe had his kidney stone surgically removed earlier this year, Emily has increased crystals from his transplanted kidney (citrate and calcium). So she is on one additional med for the protein spill and we will try increasing even more water and lowering sodium intake for the crystals. Now she is having troubles with her left arm. Emily has missed quite a bit of school and her therapies these past two months to her already modified schedule because of these pains and it is affecting her quality of life, which her dad and I strive to keep at the best level we can! Through it all her doggy, Pumpkin is by her side and helps to make it all a little bit better.