I help families connect with doctors,other families and researchers around the world for SIOD to build and gather strength to endure a challenging medical journey.
Recently I was able to help another mom. Her child's battle may not be with SIOD, but that's okay. I want to be a beacon for others out there wrestling with their own diagnosis and challenges. Truth be told:
👉Most people don't know nor will ever know the challenges behind not only Emily's #SIOD, but the behind the scenes, paperwork, calls, emails, and medical hoops we go through especially when traveling out of state.
👉Most people don't know the stress of whatever is being done medically (ie surgery this time) followed by having to leave other precious family members behind is agonizing, yet something we have grown a custom to during this journey.
👉Most people don't know what it is like to have a healthy child to guide as the special needs one takes so much time and attention. As they grow in this medical world, learning and being exposed to more and more. Even when, as in our case, Emily's younger sister is nurturing we try our best to help her feel equally as special. Thank goodness Big Daddy Joe Mo and the Dynamic Duo Grandmas are helpful at tending to her every need!
👉I am grateful I get to help others with their journey no matter where there are at in it.
Full disclosure- I may not always be the best at getting back to you right away, but know I am doing my best each day and will get there. Many blessings and keep believing. We do.
