Tuesday, February 26, 2019

As A Community We Can...

All children with SIOD have extremely low immune systems.
During "flu" season we have to be extra cautious with everyone really. Extra hand washings, masks for doc apts even if we aren't the ones sick, and changing clothes when we get home from school, outings or events.😷
We're used to and have gotten pretty darn ingenious about practicing really good hygiene, especially these winter months, because we know how detrimental even a common cold could turn for Emily.
One of our greatest concerns is one of the NUMBER ONE causes of DEATH in an #SIOD child...infection. #believeinemily #littlegiants #raregenticdisease #infection 

As a community we can all do our best to establish healthier hand washing routines, staying home when sick and with fever and staying respectfully away from those we know are also susceptible to infections.

Together We Can Do Something Extraordinary!

21 comments:

  1. MY NAME IS MARIAM BAURICE FROM SOUTH AFRICA...I SAW THIS COMMENT ON POSITIVE BLOGS AND I WILL LOVE TO TELL EVERYBODY HOW MY STATUS CHANGES TO NEGATIVE, AND AM NOW A LIVING WITNESS OF IT AND I THINK ITS A SHAME ON ME IF I DON'T SHARE THIS LOVELY STORY WITH OTHER PEOPLE INFECTED WITH THIS DEADLY VIRUS...,HIV HAS BEEN ONGOING IN MY FAMILY... I LOST BOTH PARENTS TO HIV,. AND IT IS SO MUCH PAIN IVE NOT BEEN ABLE TO GET OVER.. AS WE ALL KNOW MEDICALLY THERE IS NO SOLUTION TO IT..AND MEDICATION IS VERY EXPENSIVE..SO SOMEONE INTRODUCED ME TO A NATIVE MEDICAL PRACTITIONER IN AFRICA..I HAD A JOB THERE TO EXECUTE SO I TOOK TIME TO CHECK OUT ON HIM.I SHOWED HIM ALL MY TESTS AND RESULTS.. I WAS ALREADY DIAGNOSED WITH HIV AND IT WAS ALREADY TAKING ITS TOWL ON ME.. I HAD SPENT THOUSANDS OF DOLLARS SO I DECIDED TO TRY HIM OUT...I WAS ON HIS DOSAGE FOR 6MONTHS. ALTHOUGH I DIDNT BELIEVE IN IT, I WAS JUST TRYING IT OUT OF FRUSTRATION... AND AFTER 2 WEEKS, I WENT FOR NEW TESTS... AND YOU WONT BELIEVE THAT 5 DIFFERENT DOCTORS CONFIRMED IT THAT AM NEGATIVE..IT WAS LIKE A DREAM,,I NEVER BELIEVE AIDS HAS CURE..AM NOW NEGATIVE,,AM A LIVING WITNESS..I DONT KNOW HOW TO THANK THIS MAN... I JUST WANT TO HELP OTHERS IN ANY WAY I CAN..HAVE JOINED MANY FORUMS AND HAVE POSTED THIS TESTIMONIES AND ALOT OF PEOPLE HAS MAIL AND CALLED THIS MAN ON PHONE AND AFTER 2 WEEKS THEY ALL CONFIRMED NEGATIVE..BBC NEWS TOOK IT LIVE AND EVERY.. HOPE HE HELPS YOU OUT.. EVERYBODY SAW IT AND ITS NOW OUT IN PAPERS AND MAGAZINES THAT THERE'S NATIVE CURE FOR HIV AND ALL WITH THE HELP OF THIS MAN,,HAVE TRIED MY OWN PARTS AND ALL LEFT WITH YOU,,IF YOU LIKE TAKE IT OR NOT..GOD KNOWS HAVE TRIED MY BEST.ABOUT 97 PEOPLE HAVE BEEN CONFIRMED NEGATIVE THROUGH ME..AND THEY SEND MAILS TO THANKS ME AFTER THEY HAVE BEEN CONFIRMED NEGATIVE,,THIS MAN IS REAL..DON'T MISS THIS CHANCE,,HIV IS A DEADLY VIRUS,,GET RID OF IT NOW..
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    ReplyDelete
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  4. Hello Everyone, do you want to fix your credit? do you intend to perform a total repair of your credit report? I know a credit repair organization that can handle it perfectly without issues, and that is SKY CREDIT SOLUTION, there job is fast and 100% legit. the Judgement, eviction, and bankruptcy on my credit report was removed, they even cleared my credit card debts within 6 days, they really helped me and I owe them gratitude and a very good review. I give them a 5star rating for their services. (SKYCREDITSOLUTION247@GMAIL.COM or Text (620) 399 6316) that’s how to reach them. I insist you go for the best

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  5. I find it difficult to say that I read something online that helped me; I missed paying back my loans and was late on the rent. These did a great deal of harm to my FICO score, it dropped to as low as 406. I was at an all-time low as I need to secure a loan in order to offset my son’s medical bills. Until, I came across a testimony on SKY CREDIT SOLUTION. I decided to give to give them a try. Today my FICO is at 780 my loans have been taken care of and my credit card debts were paid off. I have qualified for a home now thanks to them. Reach them on (SKYCREDITSOLUTION247@GMAIL.COM ) Phone: (620) 399 6316. THANKS

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  6. I have never been this happy in my life. I contacted LANX CREDIT SOLUTION 3 weeks ago to fix my credit and the process was supposed to last for 14 days. I was asked to check online to confirm my job on Monday and behold they kept to their promise. The negative items and hard inquiries and debts of $48000 were all cleared. LANX CREDIT SOLUTION, wherever ever you are God will continue to bless you. I recommend them to you for quick and effective credit repair. Their work is quick and affordable. Hit them up on LANXCREDITSOLUTION@GMAIL.COM / +1 (310) 879 2541.

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  7. Hello everyone 2years back I had $64,000 in debt, including $22,340 in credit card debt. My credit score was nothing to write home about. I managed to get most of my debt removed in bankruptcy and I was left with $8,000 car loan and $35,000 in student loans. I determined not to repeat my mistakes again I was recommended by a credit agency to contact a credit film who would help fix my credit and clear my loans she then referred me to this credit company called Rapid Credit Repairs she has been working with years ago who specializes in fixing credit report. I contacted them through their mail RAPIDCREDITREPAIRS@GMAIL.COM text +1 (415) 754 7204 they got a little info from me and started from raising my credit score to 790 after which they cleared my outstanding pending bills. I bounced back quickly; I am currently on my feet and on my way to buy a house. Thanks so much RAPID CREDIT REPAIRS you guys are simply the best

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  8. I am totally amazed at how LANX CREDIT SOLUTION were able to complete my job in 10 days. I read reviews about them online. people were saying good things about them and how they helped them fixed their credit score and also cleaned up their report. I contacted them via their email, LANXCREDITSOLUTION@GMAIL.COMand later called them with (310) 879 2541 to know how the process works and what’s obtainable because I was ready to purchase a home but my credit was bad and my score 543. I had some charge offs, lots of student loans and late payments and needed a quick repair. Ten days after we got started, my score increased to 798 and the charge offs, loans, late payment removed. There is so much to be thankful for.

    ReplyDelete
  9. Hello everyone 2years back I had $64,000 in debt, including $22,340 in credit card debt. My credit score was nothing to write home about. I managed to get most of my debt removed in bankruptcy and I was left with $8,000 car loan and $35,000 in student loans. I determined not to repeat my mistakes again I was recommended by a credit agency to contact a credit film who would help fix my credit and clear my loans she then referred me to this credit company called Rapid Credit Repairs she has been working with years ago who specializes in fixing credit report. I contacted them through their mail RAPIDCREDITREPAIRS@GMAIL.COM text +1 (415) 754 7204 they got a little info from me and started from raising my credit score to 790 after which they cleared my outstanding pending bills. I bounced back quickly; I am currently on my feet and on my way to buy a house. Thanks so much RAPID CREDIT REPAIRS you guys are simply the best

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  10. My name is Andrew Walker, I don’t have much to say but am here to thank TROVIAN CREDIT REPAIRS which i got their contact after visiting my sister and her family and told them my situation at hand how i was knocked out of my home because I was unable to renew rent and my credit profile was messed up in the past. They recommend Trovians to me how they are good in fixing credit, so i contacted them and told them if it’s possible to fix my credit report that has been messed up they gave me a positive answer and they went ahead with the job. In less than 5days my score was raised from a low 478 to 805 excellent and they cleared the eviction, collections late payment. Am happily living well in my new home. I will also recommend you out there to contact them now via email (TROVIANCREDITREPAIR@GMAIL.COM +1 505 926 3648) for your credit repairs services.

    ReplyDelete
  11. Oftentimes, could seem unfair when you are unable to afford the basic things. not being able to acquire a home, car or loan. Simply because your credit score is low. I had suffered terribly due to a low credit score caused by eviction, late payments and hard inquiries. I had to contact LANX CREDIT SOLUTION a credit repair company. They literally saved me from my traumatizing experience. They increased my score and removed the negative and derogatory Items on my credit report. This review is in order to encourage you to do something about your bad credit. It took just 12 days for things to change everything.
    PHONE: (310) 879 2541
    Email: LANXCREDITSOLUTION@GMAIL.COM

    ReplyDelete
  12. My name is Alice and I just want to give a quick review and introduce you to LANX CREDIT SOLUTION, I must tell you that I was skeptical at first about this Company when they told me they’ll remove all the derogatory items in my report, and give me a better FICO. Believe me, giving in to their offer is the best decision I have made in a while, my FICO went from low 485 to a high 780 and my husband’s score went from 612 to 800. We did all they asked us to do and delivered as promised. They removed late payments, some charge offs, eviction and collections. We are still amazed at how awesome this company is. Call them on (310) 879 2541 or email them at LANXCREDITSOLUTION@GMAIL.COM. You also will testify…

    ReplyDelete
  13. My name is Andrew Walker, I don’t have much to say but am here to thank TROVIAN CREDIT REPAIRS which i got their contact after visiting my sister and her family and told them my situation at hand how i was knocked out of my home because I was unable to renew rent and my credit profile was messed up in the past. They recommend Trovians to me how they are good in fixing credit, so i contacted them and told them if it’s possible to fix my credit report that has been messed up they gave me a positive answer and they went ahead with the job. In less than 5days my score was raised from a low 478 to 805 excellent and they cleared the eviction, collections late payment. Am happily living well in my new home. I will also recommend you out there to contact them now via email (TROVIANCREDITREPAIR@GMAIL.COM +1 505 926 3648) for your credit repairs services.

    ReplyDelete
  14. Do you want a quick, genuine and permanent credit repair? then contact LANX CREDIT SOLUTION via LANXCREDITSOLUTION@GMAIL.COM / call or text (310) 879 2541. I had couple of collections and late payments plus my son’s student loans and some charge offs. My credit score was at the low 560 and needed to get approved for mortgage loan but was denied several times. A colleague told me about this people and how they fixed her credit in 10 days. I was moved so I contacted them on the 2nd OCT 2020 and they fixed my credit before 2 weeks. My score was increased to 790s and the negatives cleared. They promised that the repair is permanent. Big Shout out to them.

    ReplyDelete
  15. Hello everyone, I’m here to announce the good works of HACKNET CREDIT SPECIALIST. For the first time in my life I have never meet such a humble and honest credit specialist like HACKNET. For the past 5years now have been dying with my credit scandal I lost everything including my house, my job, I was left with nothing the whole world seems to end due to my credit report then I meet a friend who referred me to HACKNET that he is the right person to save me from all my troubles after then I contacted him and explained my troubles and we move on with the job, I waited for the couple of days he told me I was surprise when he called asking me to check my credit karma that the deal is done I couldn’t believe what I saw on my report everything was cleaned up including my late payment all marked as paid I got approved for the loans I requested and I’m now on my new apartment. All thanks to HACKNET. You can reach him directly with those contacts
    Email: HACKNET567@GMAIL.COM
    Phone: +1 949 397 8437

    ReplyDelete
  16. Truthfully, taking the decision of contacting a credit repair company was not an easy one, I desperately needed a home, I couldn’t get one due to the evictions and Late payments on my credit, with a very low FICO, I was frustrated and had no choice but try one. Luckily for my I read some very good reviews on LANX CREDIT SOLUTION and decided to contact them. I have never been happier, my FICO was increased to 750 and the late payments and evictions were taken off my report. Superb service I must say!!! You can reach them on LANXCREDITSOLUTION@GMAIL.COM or (310) 879 2541. thanks

    ReplyDelete
  17. Hi people, I encourage you to contact LANX CREDIT SOLUTION, they did me a huge favor and repaired my credit for a reasonable fee, there precision is excellent, they have all my trust and I am referring everyone with credit issues to them. Imagine erasing 12 hard inquiries, collections, charge off and eviction in less than 5 days. They went further in boosting my FICO score to 780 across the bureaus. I qualified for a home loan due to my perfect credit. Awesome, tell them Mateo Rolly referred you. Here is their LANXCREDITSOLUTION@GMAIL.COM/+1 (310) 879 2541]. they are always available…

    ReplyDelete
  18. I urgently needed a home loan but could not qualify for one due to my poor credit, I had a very low FICO and I had some inquiries, late payments and repos on my credit report, I really needed to fix my credit so I could get a home for my family. I confided in a friend and he was kind enough to introduce me to LANX CREDIT SOLUTION, they were able to fix my credit and add some positive trade lines to my credit, with a clean credit and a FICO of 782. Writing this review because I just got the loan I’ve been looking for. You can get through to them via
    PHONE: (310) 879 2541
    Email: LANXCREDITSOLUTION@GMAIL.COM
    Thank you for your time

    ReplyDelete
  19. I went through divorce recently and let my wife and kids stay in our marital home for a year before we sold it. During that time, I provided her with enough money each month to pay the mortgage and some bills. She unfortunately made several late payments even though she had the money. I was now unable to obtain a mortgage because no lender would work with me even though I had zero debt so I needed an expert that will help me fix my credit so I can be qualified for a mortgage. My uncle told me about a Credit Company that helped him remove medical bills and raised his score to 791 in 4days. I emailed them on RAPIDCREDITREPAIRS@GMAIL.COM and they responds quickly after texting (415) 754-7204. Well I did and eventually got started with the project with them. I was amazed after 4days on how they pulled through for me and removed all my late payments, raising my score to 799. I got the mortgage and all thanks to RAPID and their team for helping me. Contact them with the above email and number.

    ReplyDelete
  20. I and my husband were in need of fixing our credit. We were having eviction along with our daughter and almost 2 year old granddaughter. We were so tired of struggling and paying awful high rent because we couldn’t buy a house as a result of our bad credit. I went online and I read a lot of good reviews about HACKNET CREDIT SPECIALIST so I contacted him via his contacts; HACKNET567@GMAIL.COM (949) 397 8437. I issued out my credit situation to him and he promised to help me fix my credit within 5days. We got started and after 5days he got back to me with good news. He deleted all the nagging public/negative items and eventually raised my score to 803. We bought a new home and we are living happily ever after as a family. I strongly recommend HACKNET for your credit issues. Thank me later

    ReplyDelete
  21. Don’t hesitate to get in touch with RAYLINKCYBERSERVICES@GMAIL.COM. He is a professional and experience credit expert who helped me fixed my credit and cleared all the negative items, late payments, eviction and bankruptcy. Big thanks to RAYLINK CYBER SERVICES

    ReplyDelete