Wednesday, March 30, 2022

Help us support SIOD Brain Cell Research

 Please consider helping us support SIOD brain cell research at Stanford University of Medicine.

Our children suffer from many hits to their systems and one pressing and challenging system we are currently helping to fund is one of neurological issues.

Dr. Lewis' lab will be looking at brain cells to study why these children are having unexplained, complicated episodes that may or may not appear currently on imaging.  Migraines, nausea, seizures, fatigue, the inability to speak, clicking and tremors are all experienced, yet for no real clinically captured reasons.  The study has the potential to help more than our SIOD children.  This study has the means to perhaps help others with neurological issues.  

See the below link for our latest neuro genetics pledge to raise $100,000 for this project and how you can help.

https://my.supportlpch.org/fundraiser/3756017

This picture was taken of Emily and her daddy Joe pre pandemic at one of her grand mal episodes with much imaging and recording taking place to try and capture answers that continue to go unexplained.



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