The Brain Battle

 Neurologic Studies

Biology is very important.  Biology is probably a term that conjures up old high school memories that you loved or hated about it.  And what about the whole dissection lab thing?  I’m sure we all have stories on this.

The work that is happening at Stanford Hospital is instrumental in not only the potential to help our SIOD children; it has the makings to help any types of neurological issues.  That’s why helping us to fund our latest neurogenetics pledge project of 100,000 is so vital. 

Dr Lewis’ research lab will be looking at brain cells and neurons in a dish for neurologic study.  How exciting is this?  Our children are suffering from migraines, TIA’s, stroke, seizures and unexplained episodes.  Not all are vascular as in previous research or able to be detected on imaging.  These cell findings could aid to understand better why there are problems with the central nervous system in SIOD.

Emily had her first seizure on August 23, 2009!  She was inpatient at the time anyhow from months of complications of her kidney transplant- so we thought- and MRI's were showing the first insults of enlarged ventricles and abnormal signals of white matter, and a smaller brain.  EEG's showed her brain function was off and worse on the left side versus the right.

Unfortunately Emily has been battling the seizures, migraines and episodes with little to no answers as SIOD has complicated the spectrum- per usual.  This is what we keep fighting for as well with the research funding dollars.  We must find answers for her, for the other SIOD children and for others fighting their own neurological issues.  We BELIEVE!  Do you?